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    Helping Others

    Helping Others

    Charity

    Charity events form a major part of life at Trinity.

    Pupils recognise the importance of supporting others and a vast amount of money is raised each year. On average, Trinity School forwards over £5000 a year. 

    Trinity School has supported the following charities, amongst others, in recent years.

    • Children in Need 
    • Comic Relief
    • Genes for Jeans
    • Sport Relief
    • SOFT UK
    • Diabetes UK

    Our special charity, which we have supported for many years, is DebRA

     DebRA was founded in 1978 by a group of parents whose children were affected by Epidermolysis Bullosa (EB). At this time only some 200 people with EB were known to health professionals in the UK. The original aims of the charity were to stimulate knowledge of and interest in EB for the benefit of those with the condition and their families and to fund medical research into EB. From these humble origins DebRA has grown significantly with DebRA Groups now having been established in 32 countries around the world.

    DebRA is the only national patient support group and medical research charity in the UK working on behalf of people living with EB. DebRA relies entirely on voluntary donations.

    DebRA provides:

    • Travelling nurses able to visit children and adults in their homes.
    • Clinics, including one-stop shops where nurses, consultants, a dentist, dietician and other specialists all see the patient in one day.
    • Equipment such as computers, air conditioning units etc.
    • Respite holiday accommodation for families under severe pressure.

    What is Epidermolysis Bullosa?

    Epidermolysis Bullosa (EB) is a very rare genetic condition in which the skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds.

    EB is likely to affect 1 in 17,000 live births and it is estimated that there are currently 5,000 people with the condition in the UK. Because EB is an inherited condition (it cannot be caught), which is passed on genetically from parents to children, first time parents often do not know that they are carriers and will have no prior warning that the child will be affected, until birth.

    The condition has a number of distinct forms. At its mildest, the blistering is confined to the hands and feet making holding things and walking extremely painful. In more severe forms all the body is affected and the wounds heal very slowly, giving rise to scarring, physical deformity and significant disability. For many affected by the condition, the blistering is not limited to the skin but also affects the inner body linings such as the mouth and oesophagus. The eating of solids is, in these cases, almost impossible, and the disposal of the body waste incredibly painful. When this condition applies, malnutrition is often a consequence, further reducing the body's resistance to infection. People with the more severe types of EB also have an exceptionally high risk of developing skin cancers, shortening their lives by approximately 30-40 years. In its most severe form, the condition is fatal in infancy.

    Whilst considerable progress has been made in recent years in understanding EB and identifying the genes that cause the condition, there is as yet no effective treatment or a cure.